Spina Bifida and Hydrocephalus
Association of Manitoba

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Upcoming Events!

The Spina Bifida and Hydrocephalus Association of Manitoba is a registered charitable organization which strives to improve the quality of life for people affected by spina bifida and hydrocephalus through support, education, advocacy and research.

We provide services and support to persons with spina bifida and hydrocephalus and to their families, caregivers, medical and educational professionals. Our objective as a volunteer association is to act as a resource to individuals and families by determining needs for and providing physical and emotional support, information on legal, educational, financial and vocational opportunities.


KITE is the research arm of Toronto Rehabilitation Institute, they are conducting a survey on accessibility in Canada. The purpose of the study is to learn about the main barriers to accessibility that persons with a disability, older adults (65 years old or older) who do not have a disability, and caregivers for persons with a disability encounter in Canada.

They want to find out:

  • What are the main barriers to accessibility that individuals in Canada encounter?
  • How do these barriers affect quality of life?
  • Are the barriers identified in this survey currently being addressed by existing standards, legislation, and guidelines on accessibility in Canada?

Condolences to Bonnie Hildebaugh & Family

Spina Bifida & Hydrocephalus Association would like to send our condolences to Bonnie Hildebaugh and family on the passing of Ron. Ron was the organizer for the SB Hope Classic and a board member of the Spina Bifida & Hydrocephalus Association.

He will be sorely missed.