We provide services and support to persons with spina bifida and hydrocephalus and to their families, caregivers, medical and educational professionals. Our objective as a volunteer association is to act as a resource to individuals and families by determining needs for and providing physical and emotional support, information on legal, educational, financial and vocational opportunities.
June Is Spina Bifida Awareness Month
June is National Spina Bifida Awareness Month and we want you to share our story and reach out to everyone you know to make a donation so that we can continue to educate everyone about spina bifida and hydrocephalus.
Spina bifida is the #1 physically disabling birth defect in newborns.
85% of babies born with spina bifida will also have or develop hydrocephalus which requires a shunt or in some cases surgery to remove the excess fluid from around the brain. There is another hydrocephalus called Normal Pressure Hydrocephalus (NPH) which affects about 1 in 200 adults over the age of 55 that is often misdiagnosed as Alzheimer’s or Parkinson’s.
However, if caught early, NPH can be treated and symptoms will disappear.
We need your help in getting the message out to everyone of child bearing years about the importance in taking a multivitamin which contains.folic acid as the only preventative measure in reducing the number of neural tube defects in the babies.
We also need to share the information on NPH whose symptoms mimic other diseases, but which can be treated if detected early.
You can help us make the change we need to see in the lives of individuals and families living with spina bifida and hydrocephalus by sharing this post with your family and friends to learn more and encourage them to make a donation.